A wave of transformative but hugely expensive treatments is challenging the budgets of health systems in wealthy nations. Now countries with far fewer resources are wrestling with how to cover the therapies.
Tag: Spinal Muscular Atrophy
In India, Parents of Children with Rare Disease Plea for Help Online
India makes many of the world’s drugs, but treatments for rare diseases like spinal muscular atrophy are imported and prohibitively costly. In desperation, parents are raising funds on social media.
The Saturday Profile: Putin’s Toughest Online Critic Brings His Name, and Wheelchair, Into the Light
Recently revealed as the creator of the online persona StalinGulag, Aleksandr Gorbunov has attracted a huge following for his scathing commentary.